does anyone suffer from factor v leiden

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paula carter

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Just wondering if anyone suffer with facto v leiden or may of had a blood clot in the leg (Deep vein throbosis) If so i would just like to know if you suffer from leg pain i'm 25 now had one when i was 15 and the pain starting to get worse The doctors are not really interested.
 

Faughtey

Banned
Yes, I had one last year. (1 year ago today). The doctor thinks it was caused by a bad fall off my patio. I knew to roll when I hit the ground, but ended up with a badly sprained ankle. So that day and the next I barely moved off my chair because it hurt so bad. Didn't know I should have elevated it during this time. For the next week I didn't move any more than I had to. My legs started hurting, but I still did not go to the doctor, even knowing something had to be wrong. I woke up one morning 11/03/03 with chest pains. I had to go in to work 2 hours early for overtime that day. I worked my entire shift and got off work at 2:00 a.m. By then I had taken Tums and Advil several times, and they did not help. So I went to the emergency room. They kept me there for hours, running tests. They did not wait for all the tests to come back and released me about 6:30 a.m. They thought maybe I had a respitory (sp?) (lung infection) something going on. Went home to feed the horses and let the dogs run in the pasture. When I came in the house to get the dogs, I got a call from the hospital. They wanted me to come back ASAP. They said one of the tests had shown "something", but they didn't say what. I went back without having to go through triage. They didn't want to tell me what was wrong until they were sure. After hooking me up to a heart moniter and running more tests they finally told me. I had a blood clot in my left leg. Part of it broke off and ended up in my right lung. I could have died. I was in the hospital for 5 days, and off work for 3 weeks. Now I am on a blood thinner and have to go to my doctor once a month. They take blood and run tests on it. Wow, didn't mean to write a book on it. This is the first time I wrote the whole thing down. Still have un-answered questions that bother me. Like- How does one die of a blood clot in the lung? Do you just gasp for air and can't get enough in your lungs, then die? Is what I heard true- that 49 percent of people who have blood clots have another one within two years? That's a really scary thought. :(
Your doctor should take it seriously. I'd find another doctor if they did not.
 

paula carter

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Well i had my blood clot when i was 15 qand i'm now 25 and i havn't had one since my wasnt quite as bad as yours but i was in agony and kept getting the doctor oyut an my leg was swelkled up about 5 cm bigger than the other and they kept saying i had sprained my ankle it was purple,blue and really hot. The doctor gave me steroids and a week later i got the emergency dentist out he said you have a blood clot i'll call an ambulance he said who the hell as give you steroids they would make it even worse. any way about a year back i found out i had this factor v leiden which means my blood will clot 40% more than others
 

Maniago

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I just came across this thread today. My husband has been told he has facto v leiden which increase his risk of blood clots



We thought he had the flu last Monday, his breathing steadily got worse. On Friday the doctor sent him to the ER. He was diagnosed with Pulmonary emboli(PE) , in both lungs. After several more tests: he has multiple blood clots in his lungs, legs, liver and stomach. (still after many test do not know the cause) He is now out of the ICU and doing good, just being a pain to the docs wanting to go home. The doctors say he is a very lucky many to have made it to the hospital and he is a very unusual case to have so many clots and survive. A week after getting out of the hospital he suffered another PE, they have inserted a inferior vena cava (IVC) filter. IVC is a main vein from the legs to the lungs, the filter is meant to catch the clots. He is now on Coumadin and will be on oxygen until after the first of the year.
 

paula carter

Boxer Booster
sorry to hear that

Hi
I'm very sorry to hear about your husband glad to hear he is o.k now though and thanks for replying i thought nobody had never heard of it
 
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